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Upcoming Events

|  Thursday  |  12 pm EDT US

Amatica's RNA Sequencing Research

Amatica Health joins Renegade Research for a roundtable on the biology of Long COVID and ME/CFS, and how large-scale RNA sequencing can advance research into these underserved conditions.

Presenter: Amatica CEO & Co-Founder Nick Boyd-Gibbons, MEng, PhD.

July 23, 2026

| Thursday | 12 pm EDT US

| Saturday | 12 pm EDT US

Community Follow up to Crashes vs PEM/PESE/PENE from 7/15

Brayden Yellman, MD​ & ​CMO John Haughton, MD, MS​, lead a follow up discussion with patient reps regarding the July 15 joint panelist event with OMF on crashes and post-exertional symptom worsening. We must figure out what the definitions and ways to measure are for post-exertional malaise (PEM), post-exertional symptom exacerbation (PESE), and post-exertional neuroimmune exhaustion (PENE).

July 25, 2026

| Saturday | 12 pm EDT US

|  Friday  | 12 pm EDT US

Sleep Dysfunction, Breathing Mechanics, & Fatigue Part 2

Avram Gold, MD, from Stony Brook Medical will talk about a long covid study on sleep. A. Joseph Borelli, Jr., MD, will share his lived experience of UARS. Patient expert Natalie will also share. Registration link not available yet.

July 31, 2026

| Friday | 12 pm EDT US

|  Friday |  1 pm EDT US

Patients to Researchers Roundtable

What if researchers could hear directly from the patients they study? 
We are hosting a Research Roundtable to bring together patients with complex, multi-system, chronic conditions with researchers for exactly that. Each speaker will share 5 minutes about their medical journey (e.g. diagnoses, triggers, progression, test results, what has or hasn't helped), followed by researcher Q&A.

August 14, 2026

| Friday | 1 pm EDT US

|  Friday |  2 pm EDT US

Truvaga VNS Signal Search for ME - an informal observational project

Tess and Rivka will report on an informal, remote, observational project they have been running using (cervical) vagus nerve stimulation (VNS) for ME/CFS and Long COVID. Peter Staats, MD, Chairman of the Vagus Nerve Society, will share the science behind vagus nerve stimulation. Liisa Selin MD, PhD, viral immunologist, UMass Med School, will discuss immune changes in one patient after using the Truvaga VNS device. Additionally, two patients will share experiences with the treatment and project.

August 21, 2026

| Friday | 2 pm EDT US

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Recordings.avif
Watch recordings of past roundtables
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